WHERE You’ll BE Staying , whose your family pal and more!
Welcome to your Ketterer Family assignment page! Here you’ll find all the details that will help you feel right at home for the weekend, including your Family Pal (your dedicated chaperone), your cabin assignment, the family you’ll be sharing your space with, and your color group.
Each of these selections was thoughtfully arranged in hopes of creating a fun, supportive, and connected experience for your family!
Your Family Pal for Sun Escape 2026 is LEXI HANKINSON
Lexi has EPP and is local to the North Carolina area.
“I was diagnosed with EPP when I was a baby,” Lexi wrote. “I’ve spent my whole life either avoiding the sun or being in pain from sun exposure. EPP has played a major role in shaping who I am and how I live my life.
Lexi added “Volunteering for Sun Escape Weekend in 2024 was one of the most rewarding experiences of my life. I was unable to volunteer in 2025 (darn baby being born) and it was a devastating blow for me. I am used to missing out on camp back in the day, but this one was different! I cannot wait to make this a memorable time for your family! The sun sucks”
Contacting Lexi
We encourage our families to reach out to their assigned volunteer via email prior to the start of camp to introduce themselves and get familiar prior to the start of Sun Escape. Lexi’s email is below. We have also shared with Lexi your family’s primary email address on file should she wish to also introduce herself or get in contact with you for anything Sun Escape related (ex: checking in with you about your expected arrival time)
Your Cabin & Color Grouping Information
At Sun Escape, each family is assigned a color group to help guide the flow of the weekend. While many activities are enjoyed together, your color determines the schedule your family will follow for certain program areas. Your cabin will match your assigned color, making it easy to stay connected with your group throughout the weekend.
Your assigned color group is GREEN
The Families in Your Green Group Will Be
The Girao Family - EPP (California)
The Ludwig Family - EPP (Pennsylvania)
The Kypreos Family - EPP (Wisconsin)
The Nagata Family - Lupus (Arizona)
The Ventrice Family - EPP (New Jersey)
The Langley Family - EPP (England)
The Baria Family - EPP (Wisconsin)
The Ketterer Family - EPP (Colorado)
You will be staying in our Kansas Cabin with the Baria Family
The Baria family of four is based out of Wisconsin with an EPP father and daughter, Simone and Alex. “Attending Sun Escape last year was life changing,” the family’s mother Janice wrote. “It didn’t just give Simone a safe place to play, it gave our whole family a sense of belonging. For the first time, she met other kids just like her; Alex connected with other adults who have EPP; and our son, Ollie, made friends with kids who get what it’s like to have a sibling with this condition. I finally got to talk to other parents who truly understand what we go through. Simone went back to school more confident, telling her classmates about her weekend and her condition, and she’s been wearing her sun-protective clothes without feeling self-conscious. Our hearts were so full, and we’ve since been counting down to the next Sun Escape.”
As a reminder, each family will have their own private side of the cabin which includes a bedroom and bathroom. Both families will share a common area. Should your family wish to connect with the Baria Family prior to Sun Escape, you can reach out to the family via their email address below. They have your email as well. While encouraged, connecting is not required.
We cannot wait to see your family soon!
