WHERE You’ll BE Staying , whose your family pal and more!
Welcome to your Ketterer Family assignment page! Here you’ll find all the details that will help you feel right at home for the weekend, including your Family Pal (your dedicated chaperone), your cabin assignment, the family you’ll be sharing your space with, and your color group.
Each of these selections was thoughtfully arranged in hopes of creating a fun, supportive, and connected experience for your family!
Your Family Pal for Sun Escape 2026 is MORIAH MCLELLAN
Moriah, age 22, has EPP and is based out of San Diego. Her EPP sister Sophia and their mother Sheryl will all be volunteering this year at Sun Escape for the first time.
“I was diagnosed with EPP when I was 9 years old after having experienced symptoms from the age of 2,” Moriah wrote. “My older sister also has EPP and we went to so many specialists to try and find a diagnosis for why we were in so much pain but nobody could figure it out forever. Since then I’ve adapted to living covered up and in the shade up until recently when I started the clinical trial from Disc Medicine. I am currently studying chemistry and hope to work in drug discovery down the line because I have experienced first-hand how big of an impact scientific research can have- especially for rare diseases.
Moriah added “Sleep away camp was something I managed to participate in growing up but it took a lot of planning, willing to look different from everyone around me, and sitting out of certain activities. To be able to help out at a camp where everything is planned around the kids being able to participate to the fullest, despite their sensitivities, is incredible. This is such an amazing experience that I wish I could've been a part of growing up, and I would love to help make it memorable for your family.”
Contacting Moriah
We encourage our families to reach out to their assigned volunteer via email prior to the start of camp to introduce themselves and get familiar prior to the start of Sun Escape. Moriah’s email is below. We have also shared with Moriah your family’s primary email address on file should she wish to also introduce herself or get in contact with you for anything Sun Escape related (ex: checking in with you about your expected arrival time)
Your Cabin & Color Grouping Information
At Sun Escape, each family is assigned a color group to help guide the flow of the weekend. While many activities are enjoyed together, your color determines the schedule your family will follow for certain program areas. Your cabin will match your assigned color, making it easy to stay connected with your group throughout the weekend.
Your assigned color group is GREEN
The Families in Your Green Group Will Be
The Girao Family - EPP (California)
The Ludwig Family - EPP (Pennsylvania)
The Kypreos Family - EPP (Wisconsin)
The Nagata Family - Lupus (Arizona)
The Ventrice Family - EPP (New Jersey)
The Langley Family - EPP (England)
The Baria Family - EPP (Wisconsin)
The Ketterer Family - EPP (Colorado)
You will be staying in our Kansas Cabin with the Baria Family
The Baria family of four is based out of Wisconsin with an EPP father and daughter, Simone and Alex. “Attending Sun Escape last year was life changing,” the family’s mother Janice wrote. “It didn’t just give Simone a safe place to play, it gave our whole family a sense of belonging. For the first time, she met other kids just like her; Alex connected with other adults who have EPP; and our son, Ollie, made friends with kids who get what it’s like to have a sibling with this condition. I finally got to talk to other parents who truly understand what we go through. Simone went back to school more confident, telling her classmates about her weekend and her condition, and she’s been wearing her sun-protective clothes without feeling self-conscious. Our hearts were so full, and we’ve since been counting down to the next Sun Escape.”
As a reminder, each family will have their own private side of the cabin which includes a bedroom and bathroom. Both families will share a common area. Should your family wish to connect with the Baria Family prior to Sun Escape, you can reach out to the family via their email address below. They have your email as well. While encouraged, connecting is not required.
We cannot wait to see your family soon!
